Stanford’s fatigue scale in a questionnaire I was sent

I’m putting this here just for the sake of interest. If you have CFS or Fibro, or wonder if you do, and you have a hard time describing your fatigue to others, here’s a scale that I found in a questionnaire sent to me from Stanford (where I went for some treatment a year ago).

It might be useful for you if you’re having trouble describing what you mean when a doctor is asking you, “What do you mean by ‘really tired’?”

The blue dot is my score. I look down to the bottom of the page. I love that: normal. I really miss normal. I miss being able to exercise.

I loved dancing. I would dance for an hour or more, every day, just bopping around the room to music. Worked up a great sweat, kept all the joints lubricated, and it was just awesomely fun. The last time I tried to dance like that was about two months ago, when Greg got a new wireless speaker and I was testing out its capabilities while everyone was at work/school. The music sounded great. I started moving…carefully. I got into it. Memories came flooding back! I loved it. By the end of the second song I was exhausted. I had to stop everything I was doing and go sit down, and stay there until evening. I slept the whole next day.

It’s scary knowing that I’ve been sick for about 11 years, and slowly moving down the scale every year. Will I hit 1 this year? Next year? What about 0? It’s terrifying.

3 comments

  1. E says:

    There’s a huge gap between being out of bed, sitting, walking, standing 4-6 hrs a day .and being able to work a 40 hour a week job. I can do the former but can only manage about 12 hrs of work and my concentration is laughable.

  2. E. says:

    Part of the problem as I see it is they prioritise a 40 hr a week job over things like light housekeeping and socialising. In the real world it’s a combination of all of them. Unless you have a live in cook / housekeeper and are a hermit. I could sit at my desk and stare at my computer for 40 hrs a week and not do anything else. And probably not do a very good job either, because without frequent breaks and rest I can’t focus.

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